One in a Hundred: putting families at the heart of autism research

One in a Hundred: putting families at the heart of autism researchThis report published by Autistica are shares the experiences and views of over 1000 parents and individuals with autism.

Download One in a Hundred: putting families at the heart of autism research

The report hightlights that:

  • 94% of parents worry about the future of their child with autism
  • 75% of adults with autism report that there is insufficient help for their difficulties
  • One third of respondents had tried interventions they knew had no evidence base, demonstrating both the level of desperation and the lack of options currently available
  • Across the board, parents and adults with autism wish that diagnosis had come sooner.

The report demonstrates that families and individuals with autism feel positive about medical research, with a significant percentage agreeing that there is a need for a greater scientific understanding of autism. The majority of people Autistica spoke to also wanted to participate in research. People felt that more medical research would make a positive difference to their lives.

Find out more about Autistica at www.autistica.org.uk