Mymind

ContactLesley Dougan, Mymind Chief Operating Officer
Telephone0151 514 2521
Emailcwpadmin@mymind.org.uk
Websitehttp://www.mymind.org.uk/
AddressChild Development Centre, St Catherine’s Health Centre, Birkenhead, Wirral, CH42 0LQ

MymindMymind is a website www.mymind.org.uk and twitter feed @mymindfeed, developed by Cheshire and Wirral Partnership NHS Foundation Trust, to provide children and young people with information about mental health problems.

The process really began with a project team which was led by one of our service co-ordinators (team leaders). We enlisted the help of a Graphic Facilitation company called Deadcatdreaming and they assisted us with a great piece of consultation work with some of our service users to bring the Mymind site to life.You can read more about the consultation work in our Headstrong report http://mymind.org.uk/headstrong-report.pdf.

The initiative is to provide children and young people who may be experiencing emotional / psychological / mental health difficulties either due to something happening from within or as a result of what is going on around them – with appropriate information about the difficulties they may be experiencing, what CAMHS is all about and self-help pages in the form of downloadable PDF’s and podcasts. There are also sections aimed at parents and carers and professionals.

Background

Children and young people from across the CWP area came together to share and anchor their thoughts and feelings about how best to create an all-new online presence. The workshops focused upon developing service users deeper understanding of their own experiences of CAMHS, as well as their aspirations for its’ future. Engagement took place at tiers 2, 3, and 4, which meant that the views young people accessing all aspects of CWP CAMHS were included in the development of this provision.

The change introduced and how this was done

CWP CAMHS with the help of a creative agency brought young people together in focus groups to share ideas, which took the form of graffiti walls, full of metaphors and symbolism. The resulting artworks provided unique insights, rich in meaning, that have shaped the website’s structure, content, voice and design. The website was launched on World Mental Health day 2011.

Resources

From the onset; we wanted to include children, young people, parents, carers and staff in the website development. Creative workshops were facilitated by lead clinicians for tier 3 and tier 4 services alongside a creative agency to identify what information should be included on the website and how this should be disseminated. Staff focus groups worked on the wording of the website to ensure that it promoted inclusivity. Operational procedures were developed for both the website and twitter feed; there are clear lines of governance to ensure trust guidelines are followed. Clinicians and administration staff were recruited to train as ‘authors’ of posts that are published in the ‘news’ section of the website. Podcasts and downloadable resources were also developed that children & young people could be signposted to in ‘the box’ and ‘the box +’. Since the project began in 2011; further ‘add on’ projects have been completed and are included in the website. Initially, training for the website authors and supervisors was delivered by the website developers. Ongoing training and support for authors and supervisors is now delivered by the chief operating officer of mymind (a CAMHS clinician).

Impact

Posters highlighting the mymind website have been distributed to schools, local health clinics and GP surgeries. Appointment cards for CAMHS have the mymind contact details on; emails from CWP CAMHS workers have the mymind motif and hyperlink to the website. Clinicians signpost children & young people to the interactive sections of the website. We have our own youtube channel and ‘I store’ where videos can be viewed and podcasts downloaded. A CAMHS service in Australia asked permission for the mymind videos about ‘MAX’ to be shown in the waiting areas of their CAMHS service to reassure children and young people attending.

We continue to engage children, young people and families in the development of resources.

We are constantly seeking feedback from young service users:

One young service user, part of the East Cheshire CAMHS Crewe said of a post about the CAMHS Crewe

I love what you have done with the article- and because of the way you have presented the article, I feel truly proud of the work that I have done. The title is clear and snappy, as is the format, and the colours, pictures and illustration on the website really bring the day, and the piece to life. My only possible areas for improvements are to maybe have a note on the side explaining ways which other people could get involved in things like this and also explain what other events people have the opportunity get involved in if they would like. That way we truly are spreading the word about mental health”.

Here is a link to the website post she is speaking about: http://cwpcamhscentre.mymind.org.uk/?p=8245

The @mymindfeed twitter account now has 588 followers – this includes young service users, parents and carers, individual professionals and organisations including OCD Action; young minds; the Children’s Commissioner and Positive Practice in Mental Health.

There is a link to mymind.org.uk on the new camhschoices website: http://mycamhschoices.org/help/ and the posts that were first written on the mymind website about OCD were also published on the OCDAction Youth website.

Challenges and how these were overcome

The initial challenges faces were those of organisation, having to demonstrate the need to engage in social media and the importance of making accurate information about mental health issues relevant to children and young people. This was overcome by ensuring clear lines of governance and practice guidelines – these are now recognised as an example of good practice for social media by other trusts, for example, South Staffordshire and Shropshire Healthcare NHS FT.

Funding the initial project was sought through a successful CQuin bid. To ensure that the site remains contemporaneous requires on-going development, which of course takes both time and financial commitments.

How the change can be sustained and spread

Through Mymind.org.uk CWP CAMHS continues to engage children and young people in voicing their ideas about the service and of future developments. Recently workshops focused on the Wirral Kidstime project, aimed at families where one or both parents has a mental health difficulty: http://cwpcamhscentre.mymind.org.uk/?p=9103. We are currently developing a project to engage young people with severe learning disabilities to create a resource to enable them to have a greater understanding of Learning Disability CAMHS and to make choices about their care (in line with their capacity to do so).

What has been learned

  • To include children and young people from the outset in developing a resource that is for young people, by young people.
  • To ensure that time is given for clinicians and administrative staff to write ‘posts’ for the website and that there is someone dedicated to ensuring the smooth running of the website and twitter feed; supported by a steering group.
  • To ensure there are clear lines of governance for both the website and twitter feed.

Top Tips

  • To recognise the power of social media and to ensure the information provided remains up to date.
  • Always respond to your followers on twitter; their favourites and Re-tweets and to link tweets to information on the website.
  • Continue to run focus groups, seeking the feedback of children, young people and their families on the website, resources and how they can be further developed and improved.